Happy New Year from Northern Illinois NOAH! We enjoyed seeing many of you at our NOAH events in 2017. Your presence and support at our gatherings last year helped our families to connect and get to know each other even better. As we begin a new year, we are excited to share with you the many opportunities and events for our families to connect again in 2018! 

Looking Back at 2017- Fall Play Date
The Fall Play Date at the Kids Work Museum was a huge success this year. It seems as though each year more families attend and new connections are made. It was nice to have families donate food items this year. I would like to give them a big THANK YOU. We’re looking forward to Fall Play Date 2018! Check out NI NOAH Facebook for pictures from the Fall Play Date 2017.

Meet The Davis Family!

Happy New Year from the Davis family!  We are Kevin and Mary, and we are blessed with three kids; Axel (7), Eden (7), and Levi (6). Axel and Levi have albinism, and we are thrilled to have NOAH as a resource.  Axel enjoys learning jiu jitsu, playing hockey, and anything about outer space  As a 2nd grader, he's learning to rely on assistive technology to help him with reading and following classroom activities. He's also working on responding to questions about his gorgeous white hair. He has mastered applying his own sunscreen prior to going outside to play.  We believe he will be a great leader when he grows up! Levi is in kindergarten and is quite photosensitive, so we are experimenting with the best tinted glasses and hats for in and outdoors. He is talkative and funny, and keeps us in stitches. He loves cars and trucks. Eden is in 1st grade, and is also learning to use assistive technology to help her with speech.  She loves building with blocks. We call her the warrior of the family, but under her tough exterior, she's a loving sister who often wishes she had white hair like her brothers. Eden and Levi and following in their big brother's footsteps by taking hockey lessons. We are looking forward to attending our first NOAH Conference this summer.

Save the Date!
2018 NI NOAH Bowl-a-Thon

Please come and join us for an afternoon of fun to benefit the National Organization for Albinism and Hypopigmentation (NOAH). We are combining our yearly bowl-a-thon with the KRE Smokers BBQ Contest.

We are looking for teens with albinism to volunteer and bowl with younger kids and provide a mentoring type relationship. This is a good way to earn service hours or showcase your leadership qualities. If you are interested please contactsadamo@albinism.org or 630-254-5956 to reserve your spot.

Sunday, February 18, 2018
Open Bowl from 3:00-5:00
River Rand Bowl
191 S River Road
Des Plaines, IL 60016
(847) 299-1001


  • Bowling
  • Plenty of raffles for kids
  • 50/50 raffle
  • Silent auction
  • Chili cook off and tasting
  • BBQ samples
  • Unlimited Fun and Great Company!

Spring Play Date
 Spring Playdate
We are excited to host our Spring Play Date at the Exploratorium in Skokie. NOAH families will have access to the indoor playground where they can interact, play and explore together! The play areas includes dress up costumes, a water play area, climbing wall, train tables, and tubes and tunnels that children can explore, and much more! We will offer light refreshments. Cost is $10 per family.  Please RSVP to ninoah@albinism.org.

April 15, 2018
2:30-4:30 PM

4701 Oakton Street
Skokie, IL 60076

NOAH National Conference

Save the Date for #NOAHCon2018

Will we see you in Kansas City for NOAH's 17th National Conference, "Better Together?" Connect with the conference event page to stay up-to-date with the latest news and interact with other community members who will come together July 12-15, 2018!   https://www.facebook.com/events/424329674632865/


Northern Illinois NOAH Gala

Please save the date for our Northern Illinois Gala on Friday, November 9, 2018 at the The Victoria of Rosemont.

7:00-11:00 PM 
Victoria of Rosemont
Holiday Inn Express     
6600 N. Mannheim Road
Rosemont, IL 60018